I got not so great news yesterday. The Graft vs. Host has gotten worse and I'm back on anti-rejection medication and now on prednisone, a powerful steroid with infamous side effects. Chronic GVH shows up in a good percentage of post BMT-patients usually around the one-year mark, but only if triggered. If treated well, the condition is merely a temporary unpleasantness. But if not kept in check, can spiral into something far worse.
Tomorrow, June 6, is the fifth anniversary of my initial diagnosis and it makes me somber to think I have been fighting this disease for so long. I remember when I first got diagnosed; I thought "Six months and then I'm out". I could have never imagined I would still be fighting up to now. Then again, the odds said that I shouldn't have made it this far. I feel both joy and sadness.
On a brighter note, this Friday June 8 there is a good chance you might see me on TV again. I was interviewed for the show "Making the Cut" airing at 5pm and 9pm on TLC. I spoke about the loss you feel when all your hair falls out because of chemotherapy. But I also spoke of the hope and joy you feel as it slowly grows back after cancer. Anyway, I thought I'd let y'all know in case you want to check it out. My hair was still uber short so I look very different.